All - For what it’s worth, I’ve had the following prescribed to me since 2011 and all at “full strength” (meaning no partial doses): Several different oral bisphosphonates, Reclast infusions for five years (from 2011), Reclast again in the early 2020’s, nine months of Tymlos and now, Evenity (10 months in).

The oral bisphosphonates caused stomach issues which prompted my doc to prescribe Reclast. No issues with Reclast in either series. Although Reclast seemed to keep my bones “holding steady” it seems after my early ‘20’s infusions, my doc learned of drug holidays and halted the infusions. Tymlos caused so many issues for me that I finally told the doc I’d had enough. Enter Evenity and so far, so good.

Honestly, I’ve been preparing to ask the doc to prescribe Reclast post-Evenity because of no previous issues with it; at first he said that would be fine, but lately both he and his CRNP are dragging their feet and pushing Prolia . . . without telling me why. Also, with the posts here, I’m beginning to fear Reclast as well.

It has become evident that what works for one of us will not work for others. Don’t be afraid to challenge your doc about starting and/or stopping meds that they deem necessary, safe or helpful . . . If I had spoken up sooner about my desire to stop Tymlos, I could’ve likely saved thousands of dollars and countless time in docs offices, ER’s, etc. My rheumatologist was well aware of my symptoms, but never once considered that they could be caused by Tymlos because “those symptoms aren’t listed” on the manufacturer’s website; my quick call to Radius and they are now!

Thanks for listening as I drone on about my Tymlos issues, the med does seem to work for some, but I’m pretty pissed about how long it took my doc to react to such debilitating problems.

Wishing everyone great bones! Cheers!