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Rare Cancer: Gynecologic Extramammary Paget's Disease

Gynecologic Cancers | Last Active: 1 day ago | Replies (49)
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@nomikins

Hi, I’m new to this group and to the EMPD diagnosis. I thought I had LS (lichen sclerosis) for the past 10 years. Finally diagnosed via biopsy with EMPD. Does anyone know about the Mayo Clinic clinical trial for this? I’m curious to find out more.

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Replies to "Hi, I’m new to this group and to the EMPD diagnosis. I thought I had LS..."
Colleen Young, Connect Director | @colleenyoung | May 5 7:23pm

Welcome, @nomikins. Are you referring to this Mayo Clinic trial?

- Gynecologic Extramammary Paget's Disease https://www.mayo.edu/research/clinical-trials/cls-20387127
"In addition to evaluating treatment outcomes, tissue samples and swabs will be collected as part of this study to allow physicians to better understand Extramammary Paget's Disease (EMPD). The researchers also want to learn more about the microorganisms (microbiome) that live on or near the areas of skin affected by EMPD, in order to better understand this condition."

For more information, you can contact the study coordinator Maureen Lemens C.C.R.C. at (507) 293-1487.

Nomikins, what treatment options are available to you? How are you doing?

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