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Has anyone taken the targeted therapy osimertinib (Tagrisso)?
Lung Cancer | Last Active: Jun 16 6:00pm | Replies (139)Comment receiving replies
Hello, @tinae. Welcome to the Lung Cancer support group - a group I know you weren't eager to join. I'm glad you found us though to support you on this new journey.
I moved your question about the targeted therapy Tagrisso (osimertinib) for non-small cell lung cancer to this existing discussion:
- Has anyone taken the targeted therapy osimertinib (Tagrisso)?
https://connect.mayoclinic.org/discussion/chemo-tab/
I did this so you can read previous posts and connect with other members easily who have experience with Tagrisso, like @dragonspark @scared2 @mikee2all @jannam @56899t52 @franciekid @thieschafer @dik27 @jwittig1955 and many more.
If you search for Tagrisso in the Lung Cancer group, you'll find additional discussions on different aspects of this therapy as well. See here: https://connect.mayoclinic.org/group/lung-cancer/?search=tagrisso&index=discussions
Similarly, you can use the search for other questions you may have or topics you may be looking for in the future, such as NSCLC or stage IV, radiation, etc.
I can certainly imagine this diagnosis came as a surprise and shock. How are you doing with this news? Do you know what mutation you have?
Replies to "Hello, @tinae. Welcome to the Lung Cancer support group - a group I know you weren't..."
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Thanks for the warm welcome Colleen. I appreciate your volunteering and your mentoring. Mayo connect has some great people.!!
Yes it was a complete shock. I had two girlfriends of mine that decided to get a low-dose CT scan to check the condition of their hearts and I thought I’d like to do that so I had my primary care physician set up a referral got the results my calcium cardiac score was zero but it showed lung malignancy.
I contact my doctor and said we need to act on this right away. That was March 11. I had my first chemo treatment April 11 in the interim it showed I have a mutation EGFR I don’t know the Exxon or those other numbers that was not shared with me, but I will be asking at my chemo treatment this week.
My insurance approved the Tagrisso and I took my third pill today. At this point I’m doing two rounds of chemo and the Tagrisso then we do a pet scan to see if anything‘s happening.
I’m considered 3.95 according to my doctor, it did not metastasize to my brain, which is great. It is, however, in the lymph nodes in my medistinal and in my Supra clavicular.
As you can imagine it’s been an emotional roller coaster not in a million years would I’ve ever thought I would have lung cancer. Cancer does not run in our family. I’m super healthy always take care of myself which I’m sure everybody says the same thing.
I don’t feel like I have cancer except when they give me the chemotherapy which makes you feel crappy, but I’m just going on every day trying to stay positive a great support team and Mayo connect.