I have been on 15 mg. of Prednisone for a few months. I take 7.5 AM & 7.5 at dinnertime. Unlike most PMR patients my pain is more severe at night. Due to other health issues I had to start on very low doses of Prednisone & work my way up. My pain is better, but not gone, I do suffer flares and currently am. Having labs drawn tomorrow.
I started taking LDN a couple of months ago. At first I couldn't find a doc to prescribe, just outside of NYC, but switched to one in the city & she had no issues. I started with 1 mg. for 1 month, then 2 mg. for a month, just started 3 mg. I can't say if it's working or not, but willing to try anything. My doc sends the script to a pharmacy in Brooklyn that mails it to me.