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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

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@bigred80

THE NEW CREAM I AM USING IS DICLOFENAC SODIUM TOPICAL GEL HAVEN'T USED IT LONG ENOUGH TO TELL BUT MIGHT BE A LITTLE BETTER BUT AS I AM WRITING THIS I AM HAVING TINGLEING IN BOTH CHEEKS. LIKE EVERYONE ELSE YOU LEARN TO LIVE WITH IT. I HAVE THOUGH ABOUT MARIJUANA WHAT DO YOU THINK? MY CHEEKS ARE SOWLLEN AND I BITE MY CHEEKS AND LIPS A LOT. DOES ANYONE ELSE HAVE THAT PROBLEM? THANKS

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Replies to "THE NEW CREAM I AM USING IS DICLOFENAC SODIUM TOPICAL GEL HAVEN'T USED IT LONG ENOUGH..."

my new cream is diclofenac sodium topical gel never notice any change. ice packs and heat packs help the most. learning to live with it as I do all my pain and I am sure everyone does the same. keeping busy helps the most but have lost 25lbs in the past year. can't eat a lot of things because of the chewing. good luck to all and have a great day. thanks

Thanks for reporting back BigRed. I'm sorry the cream didn't help more. What can you do to get the calories you need? Have you seen a nutritionist?

TODAY IS VERY VERY BAD WOKE UP IN VERY BAD PAIN PUT ICE PACKS ON IMMEDIATELY. AND TOOK PAIN PILLS ALSO MY GABEPENTIN I AM NOT SURE THAT HELPS AT ALL. I SURE WISH SOMEONE OUT THERE COULD HELP. I HAVE BEEN TO MAYO CLINIC WHEN I HAD CANCER THINKING ABOUT GOING AGAIN. ALSO THINKING ABOUT MEDICAL MARIJUANA ANYTHING TO STOP THIS FEELING. SLEEP IS THE ONLY WAY TO GET OUT OF THIS FEELING. ANY MORE SUGGESTIONS. THANKS

I am so very sorry for your pain. Do you take anything for inflammation? A 600mg or 800mg Ibuprofen might calm down the inflammation and help take the edge off the pain. I hear the desperation in your voice; I would definitely go to Mayo for an evaluation.

YES I TAKE PAIN MEDS  THAT DOES NOT HELP OR MAYBE IT WOULD BE WORSE WITHOUT THANKS<br>

Hi Big Red. I too am having a horrible time with my pain due to Trigeminal Neuralgia. Mine has been keeping me awake for the past 3 nights, so sleep is impossible. It seems like a couple hours after I fall asleep, it starts. Then every hour on the hour, until I get out of bed for a few hours and start moving around. I'm SOOO tired! I've been on Gabepentin for 3 1/2 years, 3X day. It doesn't help. My doctor has me on Tegritol now.JUST started the nighttime does, so hoping and praying it helps! My nighttime pain started a few days ago when our weather abruptly got 20 degrees colder with snow.
I too would do ANYTHING, ever the medical marijuana if it would help.
For me, really hot waster in my mouth on the pain side seems to help SOMEWHAT.

Have not tried the cream, my neurologist started me on dilantin , it hels a little. Still on Neurontin and nirtriptoline, they had to stop the Trileptal, because sodium kept falling. Pain not as often but still intense.