← Return to Trigeminal Neuralgia*

Discussion

Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

Comment receiving replies
@colleenyoung

Welcome @kandigirl25, I'm glad to see that you connected with @lamerex4. You'll notice that I moved your message to an already existing discussion where a group of Connect members are talking about living with trigeminal neuralgia. In addition to Lamerex4, you'll meet @bigred80 @tlgreg60 @reneewise50 @ladyjane85 and @uncbball.

I like Lamerex's suggestion of finding a doctor who understands TN. Kandigirl, what treatments have you had thus far?

Jump to this post


Replies to "Welcome @kandigirl25, I'm glad to see that you connected with @lamerex4. You'll notice that I moved..."

only gabapentin and duloxetine have had the problem almost 2 years I use hot packs and ice packs that helps a lot carry them where ever I go. keeping busy helps been to two specialist they said no surgery. I just got a new cream to apply to face. I may go to mayo clinic or Cleveland clinic. help if you know anything better good luck thanks

BigRed, should you wish to get a second opinion at Mayo Clinic, here are the contact numbers to call http://mayocl.in/1mtmR63. What is the new cream you are using? Is it helping?

I have been struggling with atypical facial pain for nearly two years. I've tried gabapentin, topamax, nerve blocks, muscle relaxants, medical marijuana and botox. Nothing has worked but after Botox I had five consecutive good days. Now I am in considerable pain which is constant, though I do have some good days. My doctor says I may have an immunity to Botox and I am having myobloc (another type of botox) later this week. I also use a compounded cream and find that medicated bandages (I cut them to size) give me some relief. Any ideas or suggestions are greatly appreciated!