I am so sorry to hear your story. That is awful. I hope that you find some relief soon. She was hospitalized during covid and given remdesivir and dexamethasone. She was sent home with 2 days of dexamethasone and was great until after she was done with the dexamethasone. That is when everything went downhill. I am wondering if a low dose of prednisone might help. I was also told that maybe an extended course of Paxlovid might stamp out any lingering virus causing inflammation. I wish there were a magic bullet. It seems like we all have to share the information we find since the people on these forums are often more informed than some doctors.

Wishing you all the best.

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