Good morning, @tkidd51 I’m sorry to hear you had such a difficult time the first 3 months. Was it the transplant itself or just being away from home for that length of time?
Those first three months can be difficult. There’s so much that happens during that time as we heal from the side effects of chemo, all the meds and adaptation to the foreign cells in our body. I had my share of challenges during that time too. It’s amazing what our bodies can go through and overcome, isn’t it? Now I’m 5 years out and feel as though nothing ever happened.

However, the PTSD is real. For me that was delayed several years. I sense it more now than ever before and have little flashbacks. Considering everything you went through, it’s pretty normal for anxiety to take control of your thoughts. Talking through what’s bothering you can really help, especially with someone who has gone along that same journey. That’s why this forum has been so helpful to many of us who have had bone marrow transplants…you can talk to us.

You mentioned having some gvhd issues. If you’d like to share your experience, I started a discussion on chronic gvhd a few years ago. Often these issues correct themselves and settle down over time as the new immune system begins to adapt to the proteins in our bodies. It’s actually important to have some gvhd, proof that our new immune system is fully functioning to help prevent any return of the AML.

Are you still taking an immunosuppressant such as tacrolimus?