1. < Osteoporosis & Bone Health

Is there an alternative path after years on Prolia?

Posted by pnapkori @pnapkori, May 4, 2023

How long can I stay on Prolia? I have osteopenia and slight osteoporosis in my spine, and have been taking it for six years . I also exercise and take calcium, magnesium, d-3, and K-2. My numbers have stabilized but I am unsure if I should be doing something different. I don’t have confidence in my doctor’s knowledge on the subject! Thanks for any advice.

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bobweller | @bobweller | Apr 27 5:31pm

Do you get bone scans to see how bad the bones are. I got one before I started Prolia a few years ago. Had a scan before and had 2 since. It showed improvement. Have you gotten and bone scans.

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1 reply
njhornung | @normahorn | Apr 27 5:56pm
In reply to @gently "joanne 1941 and elizabeth, I've enjoyed your exchange and think it wonderful that you'll continue to..." + (show)
@gently

joanne 1941 and elizabeth, I've enjoyed your exchange and think it wonderful that you'll continue to communicate privately. Now that you have each other's numbers press the tree dots at the end of the posts and tap report comment and ask that your reply's be deleted to keep your private email and phone private.
best luck with your bones

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I want to echo this advice as all of our posts are openly available to anyone searching the topic.

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njhornung | @normahorn | Apr 27 6:00pm
In reply to @bobweller "Do you get bone scans to see how bad the bones are. I got one before..." + (show)
@bobweller

Do you get bone scans to see how bad the bones are. I got one before I started Prolia a few years ago. Had a scan before and had 2 since. It showed improvement. Have you gotten and bone scans.

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Why wouls anyone even consider one of these medications without having had a bone density scan? A bone scan is another matter. That is looking for bone cancers.

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mlseville64 | @mlseville64 | 4 days ago
In reply to @joann1941 "I have been on Prolia for 5 years after 2 years I went from Osteoporosis to..." + (show)
@joann1941

I have been on Prolia for 5 years after 2 years I went from Osteoporosis to Osteopenia with excellent improvement in all of my scores. It’s now 2 years later and I have stayed on Prolia and due for an injection in June and a DEZA in August.
I have had lower spinal pain and my Endocrinologist referred me to a Rheumatologist that was purely a tele call but she ordered lumbar X-Rays which I wanted before my upcoming injection. She was impressed that my hip bones looked fantastic but I had some arthritis in lower spine. I want my DEXA before my inj in June which is when the Prolia has waned to see my numbers. If good I want off the Prolia. I’m a nurse and any medication not needed I don’t want. But I am 84 and prior to Osteoporosis I have been Osteopenia for years and had no discomfort. Coming off I will be very careful to transition to appropriate medication and monitor for rebounding.

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Hi Joann
I have been on Prolia since 2015. I have dealt with side effects and fractures on 2 occasions while being on it. My Rheumatologist is starting me on Forteo (generic) in Dec 2024 in place of my next Prolia injection. Do you feel this is the right med? I thought after Prolia you were supposed to be put on bisphosphonates meds? What are your thoughts? Lord knows I don’t want to deal with another fracture.
Thank you

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