I had 2 PSA tests given by Kaiser 10.9 and 11: What test is next?

Posted by ovstampco @ovstampco, Apr 22 1:26pm

I'm 67 and I was checked for PSA ( If I had known the rabbit hole I was getting into I probably would not have requested the test ) . But I checked and did some research online and on youtube for some basic knowledge . Today I just had a video conference with a Kaiser PA - she said I need a biopsy , I asked if maybe an MRI would be a possible first step but she said no that I need the biopsy and the MRI wouldn't help at this juncture . Since I have Kaiser and I'm not very wealthy I'm wondering if I should consult with a non Kaiser Urologist for a second opinion and if so what would the costs be and are there any recomendations for someone in the Orange County area in SoCal . Any advice at this time would be great - things I should be doing , or suggestions to help guide me at this early stage . I'm getting somewhat anxious and I'm not able to focus on which questions I should be asking ..... I have seen some negative stories about the biopsy .... Thanks in advance

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gbrickler | @gbrickler | Apr 27 4:00pm

Beware of placing too much importance on low or relatively low PSA results, and diagnosis without adequate diagnostics. . My initial symptom was frequent urination and inability to empty my bladder. My PCP ran 2 PSAs, both elevated from previous tests but neither greater than 4.0. I was placed on Tamsulosin. My symptoms increased over the next months, from the need to urinate every 6 hours to < every hour. Each time I reported this to my PCP or the NP urology had assigned me I was told “it may take months for the Tamsulosin to work, and if you cannot pass any urine go to the ER.”. After 6 months I was in the ER. In retrospect I placed too much faith in my PCP and the NP. Several times in the 6 months I requested additional diagnostics, and to been seen by a MD urologist, only to be denied both and told theTamsulosin takes time. I incorrectly assumed that as they practice at a major university medical center, this was the best care available. Short story, I consulted with another medical center, was given a MRI and CT within 2 days, then a biopsy and diagnosed with metastatic prostate cancer. Have undergone chemo and now on abiraterone and leuprolide. PSA and testosterone went to and have remained undetectable. I am experiencing the side effects of the medication, but my opinion is that it beats the alternative. Lessons learned: do not completely trust PSA readings; if your current treatment does not seem right, question it vigorously; do not hesitate to seek a second opinion; and do not fear the diagnostics and treatments that may be recommended. Best wishes to you.