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DiscussionFactors that encourage the body to begin producing cortisol again
Polymyalgia Rheumatica (PMR) | Last Active: May 5 8:04am | Replies (16)Comment receiving replies
Replies to "I have now been odd prednisone for 2 months. I wonder how long it will take..."
I have now developed neuropathy in both feet. I read this can be a by product of autoimmune disease. Has anyone else had this problem?
I invite anyone in the group to add different opinions, but this is my advice for those first confronting these familiar experiences:
Your own natural Cordisol production is maximally created on a Circadian "Slope" .
Most of the production is in the morning, least at the end of the day. You want to encourage that "rhythm".
Get up with sunrise and walk even for 15 minutes (or more) towards the sun. Don't wear sunglasses but obviously don't look directly into the sun. (In the back of the bottom of your eye is a receptor that stimulates Cordisol production). Try to expose some of your skin to sunshine.
Try to do your active chores or activities at the beginning of the day and your less active tasks toward the end of the day. Turn lights on inside early in the day and subdued lighting at the end of the day. Don't be afraid to go to bed early if it calls to you. But try not to stare in the evening at bright tv, computer, or smart phones (I listen to audibles). This will at least begin to syncronize your Circadian/Cordisol correctly.
My experience was the "PMR told me" .... curl up in a ball on the floor don't move. But I found almost every time I went against that message and went outside, got a little fresh air, and even minimally puttered around in the garden or similar, my mood and energy picked up a little. I guess my biggest mistake was in the beginning being seduced by the Prednisone's immediate affects and having a Rheumatologist who knew how to write prescriptions but nothing about adrenal chemistry. So she agreed I could temporarily raise my dose significantly when I was going to participate in an activity that required strength, flexibility, and energy.
It took me an extra year to get back to the dose I was on previous to that.
The question of how or why our body could or would kick
back in making Cordisol on its own when the Cordisol is already being topped off is a question a lot of us are asking and I've yet to get a straight answer yet.
So my first responsibility is to myself and loved ones, to maximize functionality and quality of life...... " responsability to loved ones" refers to the what I call the "chemical depression" that accompanies my PMR.... A
depression that is more oppressing than sad or depressing.
I do use an herb, Mitraspeciosa (kratom) but it needs to be a specific strain, as different strains provide different results. I order from the Mitragaia company the " Super Green Malay" strain.
From there,....depression management is very personal and different for everyone.
For me, yoga is a double value, helping my body stay as supple as possible which minimizes the length of time my PMR flares last, and provides a sense of calm. I am so self absorbed as would be natural for anyone experiencing a pain that repeats with no end, I try to release from my self centered place in my head and do something kind for someone else.
I apologize to the group if these ideas seem silly or even offensive, it's just honest, .... I thought it useful for anyone who is first encountering this situation to hear at least one person's experience about making lifestyle choices to at least maximize their quality of life as they work on the other parts of the equation (clinical/pharmaceutical) .