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Atypical Squamous Cells in urine cytology
Kidney & Bladder | Last Active: Apr 29 12:10pm | Replies (13)Comment receiving replies
Hello @glinda47. My husband has battled bladder cancer for 5 years now with most of his care at Mayo Clinic in MN. His local urologist missed his first tumor as did the radiologist reading the CT. Through this long journey he has not gone longer than 6 months for recheck cystoscopy, and/or CT. Even after a radical cystectomy with Neobladder surgery. Mayo urologists stay on top of the metastatic possibilities even without a Lynch background. I would recommend a second opinion from a top notch cancer or referral center. Are you near one at all? We travel OH to MN multiple times a year for our cancer care at Mayo.
Replies to "Hello @glinda47. My husband has battled bladder cancer for 5 years now with most of his..."
Within the last several years, advances in bladder cancer treatment have lead to the questioning of the need for a radical cystectomy. Using translational medicine and tumor genomics, often other treatments are just as proficient, and indeed, bladder sparring is now an option for many. When you point out "metastatic possibilities", a radical cystectomy may decrease this but so can other newer therapies. And thankfully so, for radical cystectomy is indeed life -altering.
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Wow, what a story.
I am so glad your husband has received the quality care you both deserve.
And sounds like you've been through a lot to get there.
Yes, I am about 40 min from Johns Hopkins and also several hospitals with trusted cancer centers in DC - about 1 hour away.
Thank you for sharing, I need to get an appt at Hopkins and stay on top of being checked as I am regularly for colon and gastric cancers.
Take good care, both of you and again, thanks.