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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

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@colleenyoung

Hi @lamerex4,
It must be so hard to see your father suffer with this pain. Mayo Clinic's info on trigeminal neuralgia treatments list a variety of anticonvulsants, antispasmodic agents or botox injections http://mayocl.in/1Mz18C8 You may wish to read this older discussion thread where Connect members @cagon @jwhite64 @calebba @jenkob @zane @omlee @nomore are talking about their experiences with treatment http://mayocl.in/28SOKk5

@Restless67 do you have any suggestions for @lamerex4?

@lamerex4, does your father live with you? Are you his main caregiver?

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Replies to "Hi @lamerex4, It must be so hard to see your father suffer with this pain. Mayo..."

I HAVE NO HELP BUT ARE IN THE SAME VOTE BOTH SIDE OF MY FACE ARE NUMB AND IT DRIVES ME CRAZY. THE MEDS I HAVE TRIED HAVE NOT HELP I USE ICE PACKS I CARRY THEM EVERYWHERE. THAT SEAMS TO HELP SOME . IF ANYONE KNOWS ANY MEDS THAT MIGHT HELP I WOULD LIKE TO HEAR FROM THEM... I DON'T THINK TO MANY PEOPLE AND DRS. KNOW TO MUCH ABOUT THIS. I HAVE BEEN TO A SPECIALIST AND HE SAID DON'T HAVE SURGERY. THANKS

Great news! We went to the cardiologist yesterday and she gave the all clear and encouraged us to come to Mayo! Dad is suffering quite badly again. Hopefully I can convince him it is worth the effort.

Hello. One of my family members has the same diagnosis. I am curious about the reasons not to have surgery. Do you by any chance have an awesome web site that I would be able to research this diagnosis further?

to my understanding it may not be a success and the nerve they cut could damage the use of your face expressions. two dr. were against surgery. I have also read that it could come back, not sure that is true. I try to keep on the go and keep busy I carry a bag of ice where ever I go to use on my face. that helps