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Support For Those Quitting Prolia

Osteoporosis & Bone Health | Last Active: Oct 2 7:15am | Replies (136)
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@windyshores

Two things @michaellavacot:

I have been told to take calcium and magnesium at least two hours apart, because they compete.

My blood calcium is always 10.2-10.3. I usually take 600-1000mg in a supplement with dairy allergy. Your blood level, you said, was 0.5 but it dipped to 8.7. Yet you have hypercalcemia that is bad enough that you are avoiding Forteo and Tymlos.

I have stage 3 kidney disease (eGFR as low as 36 and as high as 51). But my kidneys do not leak calcium. What is the significance of your high calcium in urine vs normal/low normal in blood?

My PTH is always normal. Doctors have not commented on my 10.3 calcium blood test. I know there are deeper tests for PTH function but I have responded well to Tymlos so leaving that issue for now.

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Replies to "Two things @michaellavacot: I have been told to take calcium and magnesium at least two hours..."
lulub98 | @lulub98 | Apr 29 6:56am

I have not heard of Tymlos.
I’ve been told to begin Fosomax, because I’m susceptible to fracture.
I have not made a decision to begin that or Reclast.
In fact. I am seeking out ways to build bone without medicine. Any advice???

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Michael Lavacot | @michaellavacot | Apr 30 4:32pm

Hey @windyshores - My blood calcium is typically really close to 9.5, but after starting Prolia, it dipped down to 8.9 (correction to my earlier 8.7 post). I have since boosted my calcium intake and it's bounced back to 9.6 on my last test. The results makes sense to me since I'm peeing out a lot of calcium (hypercalciuria, not to be confused with hypercalcemia). If my body can't get calcium so easily from my bones while on Prolia, it will drop my blood calcium.

Glad to hear Tymlos is working well for you. I would gladly leave some issues for something working well at this point.

I'm giving a training on calcium and vitamin D that includes PTH and hyperparathyroidism next month to the BHOF Bone Buddies support group. I will post the recording after the meeting. Might be a nugget in there for you.

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