Updating,
I am day 17 after transplant. I must say I do not dig into treatments before I have them. I read all the materials COH provides, but I do not dig in deep. I will not have all the symptoms or side effects, so the worry is less. I will not that 2 days before my transplant I got melphalan chemo. Interesting. Day 16 I heard that this chemo damages your GI track. Great, and likely the reason tomato type dishes I ate, and fruit had me vomit a lot. For a number of days. I was finally given a 72 hr chemo that combined with Zofran ever 8 hours stopped it. 2 days free. I had been given Zofran and Compazine, but Compazine makes me sleepy.
I am also participating in the Research study meant to help stop the host/graft disease. Again, not looking too deep. I never noticed i had 2 more chemo day 2 days after transplant. Really, it took me a while to get how this two chemo's were the final flush to clear my cells out of my blood. Allowing my new cells a clean place to grow. I thought after the chemo, that taking my treatment, I only noticed the days I took the pills for this research.
Really, if you need all information, ASK. I asked the varying RN's I have had the last 20 days, and each filled me in. I took each day opening my eyes and feeling how I felt. Nurses come at 7:00/7:30 for shift change. 8-8:30 rotating doctors. I could then report how I felt. More on that in another post which will include my discharge date next week.
Ask Questions. I finally remembered i never asked about what my MDS leads to. Strange I thought. Today I asked on Day 17 my RN what Leukemia I might get. The funny thing is i think she said AML, but i did not write it down. I have more to share, but later.
To all on this journey, I look forward to a number of bone marrow biopsies in the coming months and year. They are manageable and i know the future ones will let me know how my new cells are working.
One day, sometimes one hour at a time.
Katg