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Not eligible for Immunotherapy. Now what?

Lung Cancer | Last Active: May 22 5:00pm | Replies (58)

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@detroitmom23

I was diagnosed with stage 3c adenocarcinoma Non small cell in December 2022, I was not eligible for surgery because the cancer had spread to lymph nodes in my clavicle area. I underwent 5 rounds of chemo and 30 radiation treatments. About 6 months later I went through it all again. 5 more rounds of chemo and 15 radiation treatments. I just finished those second rounds 3 months ago and have another scan scheduled in about 10 days. I’m terrified because I haven’t been feeling well; increase in pain as well as coughing, I’m wondering how many times they would advise additional chemo and radiation when I’ve already been through it twice? Will they continue trying or tell me there’s nothing more they can do? I’m not eligible for immunotherapy. I don’t have the markers for it. Has anyone been through chemo and radiation more than twice?

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Replies to "I was diagnosed with stage 3c adenocarcinoma Non small cell in December 2022, I was not..."

It's my understanding that Keytruda has been approved for all levels of pd 1 or pdl 1 including negative. Please check with your oncologist.

Hi @detroitmom23, It's great to hear from you, but we all wish you were feeling better. Possibly you are still experiencing side effects from the treatments. Your body has been through so much. I know this isn't easy, but until I actually have the scan reports, I try to focus on the current day, and not speculate too much. Without knowing what's happening, it's hard to know what treatments may be available. I do hope you have access to the Grand Rounds again or a second opinion. Additional feedback for your case is a good idea.