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DiscussionCRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: Oct 25 3:58am | Replies (366)Comment receiving replies
Replies to "Omg. I came here to ask if anyone knows anything about CRSP of the spine. I..."
Oh my gosh getting into this system is like getting the lips off of a chicken! I have CRPS, too. Sorry to hear about your issues. First off, I’ve found a support group: FightTheFlame.org. Next, get off of all refined sugar, red meats, dairy. No alcohol. Watch citrus and root veggies and night shade ones. Eliminate all and slowly add them back on until you figure out what you can eat. As painful as it is MOVE. I’ve got an implant but mine is for my leg. Find a teaching hospital. I found the University of North Carolina in Chapel Hill and they were of great help. I was directed there by the Mayo Clinic in Jacksonville, FL. Contact Mayo…I called “nurse on call”. I was my own advocate. My implant is a Boston Scientific. I’ve had wonderful success after jumping some hurdles with my original representative. I’ve got a new representative that is fabulous. I’ve also had a temporary implant “Sprint” out of Beechwood, Ohio. It has been put in twice in my sciatica behind my left knee and I was allowed to use it for 90 days. It was a wonderful relief! Actually pulled the CRPS out of my right leg. Hope this helps. Contact FightTheFlame.org. Helps to know you aren’t alone!