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Does anyone have experience with Palliative Care?

Chronic Pain | Last Active: 5 days ago | Replies (131)

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@bebold

Decided to delete but can't.

I felt hopeful to get help medicare will pay for but found out palliative care will still only pay for a bath and remove my only supports from my life. Sounds like you have to have a palliative care dr and at home they give you emotional support. Medicare won't pay for two.

Anyway. I was hopeful you had an answer. If I had Medicaid, I could hsve the world for help. I have medicare/medigap (for which I am grateful) but if I'm not willing to get naked for a bath within minutes of anyone they send, even a 20 yo guy, I can't have anything. I winder if someone said it that way to congress they would understand better what elder care means. But respect older people right.

Aging in place doesn't exist unless you have money to pay for everything. Otherwise, it means ask your kids to help.

Very discouraging. I'm 69. Disabled my whole life but recently fell and need help. Nothing available insurance will cover.

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Replies to "Decided to delete but can't. I felt hopeful to get help medicare will pay for but..."

It saddens me to think that whether it be aging, disabled or the need for palliative care that money and what you can afford comes before caring for the person and their needs and the families. Something needs to change.

I am so sorry, I just had a friend die who should have had more care but you're right what you can afford.