← Return to Clinical Information or Fishbowl?

Discussion

Clinical Information or Fishbowl?

Polymyalgia Rheumatica (PMR) | Last Active: Apr 30 2:14pm | Replies (20)

Comment receiving replies
@stevieb

I agree. I have a lot of gratitude for this forum. As a Newbie I wanted to put into proper context the scope of the moderators interaction and the clinical overview's ability to correct misinformation and/or point to reports and studies.
I was frustrated before joining the forum, with the Practitioner's available to me, lack of study and clinical interest in recovery from PMR or at least the strategies available to allow the body "a reason" to produce it's own
Cordisol as long as it was already being provided.
Since writing that post I have been happily overwhelmed by great source reading links!

Jump to this post


Replies to "I agree. I have a lot of gratitude for this forum. As a Newbie I wanted..."

I concur, @stevieb. It appears that your call for evidence-based information along with fellow patient experiences went well answered, especially from @dadcue @nyxygirl @jfannarbor. As @wilmingtonemperor mentioned, it would be foolish to leave @johnbishop off this list. He is stellar at searching Google scholar, Mayo Clinic and more for trusted, evidence-based information as well as connecting like members together.

I firmly believe (or I wouldn't be the Community Director of Connect) that patient exchange is highly valuable for a number of reasons. Patients have "skin" in the game so to speak and are tenacious seekers of information and solutions. As a collective, patients have power in numbers to search for and share information from multiple sources, doctors, the literature, patient eduction sources, personal experiences etc. The integrity of the information shared is maintained by a number of collaborating mechanisms:
1. Technical triggers that keep spammers out of the community.
2. Moderators and volunteers who monitor the discussions.
3. Active members who question others about the information they shared for better understanding and clarification. We all learn together.
4. Active members who report misinformation or spam if they got through the mechanisms of 1, 2, and 3.

If you see misinformation or someone who needs help or a typo that could lead to misunderstanding or anything that needs a moderator's immediate attention, please report it.
1. Click the 3 dots at the bottom right of the message.
2. Select "Report this comment".
3. Explain in brief why you're reporting the post and click Submit.

Now, to share my bit to contribute to the conversation. Check this out from 2024.
- Mayo Clinic Talks: Rheumatology Edition https://ce.mayo.edu/content/mayo-clinic-talks-rheumatology-edition
Mayo Clinic Talks is a podcast series targeted to the primary care clinician community. Episode 6 (31 minutes) (February 8, 2024) focuses on PMR.

"Episode 6: What primary providers need to know about Polymyalgia Rheumatica
Polymyalgia rheumatica was first described in 1966 as a case report. It can have a wide range of symptoms and at times, can be challenging to diagnose. As with most rheumatologic disorders, the exact cause isn’t known. While there are no specific laboratory tests which establish a diagnosis, there are some that are very useful. One of the most important features of polymyalgia is its relationship with vasculitis and temporal arteritis. In this podcast, we’ll discuss polymyalgia rheumatica with rheumatologists Cornelia M. Weyand, M.D., Ph.D., and Kenneth J. Warrington, M.D., from the Mayo Clinic. We’ll review the typical presenting symptoms, how to establish a diagnosis, helpful laboratory tests and its management."

You can find Mayo Clinic Talks on your favorite podcast app like Apple podcasts, Spotify, Podbean, etc.