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Clinical Information or Fishbowl?

Polymyalgia Rheumatica (PMR) | Last Active: Apr 30 2:14pm | Replies (20)
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@jfannarbor

In getting off of prednisone, I have many times got down to zero for months then the pain would return. This happened so often that I went on 2.5 mg of P and for 4 years was without pain. Then I needed to go to 5 mg of P. We are in the process of trying other anti inflammatory drugs. Hydrocholoquine didn't work for me. Now I am trying sulfasalazine.

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Replies to "In getting off of prednisone, I have many times got down to zero for months then..."
DadCue | @dadcue | Apr 26 12:16pm

Until PMR was diagnosed, I had no problem tapering off prednisone … sometimes from 100 mg to zero on a month or two. That was when my only diagnosis was reactive arthritis with uveitis. Flares of uveitis would happen every year or so but went into remission with a high dose of prednisone followed by a fast taper.

PMR was a new beast. I wouldn’t say PMR was more painful.. I didn’t need a higher dose but I was told I would need to take prednisone for at least a year. I couldn’t taper off prednisone for 12 years after PMR was diagnosed.

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