Reclast jaw pain

Posted by trishw99 @trishw99, Aug 6, 2023

I had first Reclast infusion May 2023.
Last week or two I had increased tooth sensitivity, and started using Sensodine.
Yesterday I started jaw pain and today it is swollen and sore.
I called Endo who prescribed, and waiting for a call back.
Has anyone else had this happen???
Thank you!

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@susanfalcon52

janflute,
I receive first Reclast infusion in June after year of Evenity. I will share every side effect or lack of one.

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Why are you switching to Reclast?

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@susanfalcon52

janflute,
I receive first Reclast infusion in June after year of Evenity. I will share every side effect or lack of one.

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Susan ,
I receive mine a few months after you. I don’t know how much time off after Evenity I will start . I think my endocrinologist told me that I would have a month off . I thought I read from Wendy that it should be a couple of months after Evenity for the mineralization to occur. Please do let us know every side effect or lack of one . Also if you are going to have the full dose . Thank you

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@tenutarose

I had a Reclast infusion 8 days ago and had a VERY difficult time including going to the ER to get an IV to get rehydrated. I’ve had fevers, chills, vomiting, severe aches and joint pain for 8 days. I was treated for a UTI which is gone but the overall weakness and joint pain has continued. Prior to this I was a 72 year old, active, very healthy woman. My norm was to go on 4-6 mile difficult hikes and now I get tired walking from bed to couch. Please think carefully before you get this infusion. I will not be getting another one.
Rosemary

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I am so sorry to hear this. I had a Reclast infusion 18 months ago. The severe side affects you listed last about 7 months for me. Then less severe side affects but still experiencing swollen joints, insomnia, jaw pain, back pain and more. I was a 74 yr old that swam one hour a day and biked an hour a day. Still trying to get my energy back. Everyone on this site please rethink Reclast infusion. I sincerely hope your side affects do not last as long as mine. Praying for your quick recovery.

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Yes, and more. See my posts for more details.

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@evg

Why are you switching to Reclast?

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evg,
Not exactly switching. After a year on Evenity, you have to go on a bifosphonate.
The choices are Reclast or an oral such as Fosimax. I can’t take the oral meds due to GERD. GERD doesn’t sound like a big deal if you’ve never had it. It is. It can feel like a heart attack or just make you feel all over terrible.

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@lizzabeth

I am so sorry to hear this. I had a Reclast infusion 18 months ago. The severe side affects you listed last about 7 months for me. Then less severe side affects but still experiencing swollen joints, insomnia, jaw pain, back pain and more. I was a 74 yr old that swam one hour a day and biked an hour a day. Still trying to get my energy back. Everyone on this site please rethink Reclast infusion. I sincerely hope your side affects do not last as long as mine. Praying for your quick recovery.

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I am truly sorry to hear about everyone’s experience with Reclast. I had my second infusion in March with no side effects. My first infusion in 2023 I had flu like symptoms for about 6 hours, then gone. I went on Reclast because I had side effects from Evenity that were nasty. My endocrinologist contacted the drug manufacturer of Evenity that advised that just maybe I wasn’t a good fit for Evenity; hence the Reclast. I guess what I’m saying is there is no one drug fits all and each person and there makeup is different having different impact on each person. Brittle bones is not what I signed up for either and making the decision to go on any drug was very difficult for me. But after a few stress fractures and a decrease on my bone scan I had to choose to assist with my condition. I hope everyone has good luck with their drug of choice. I only write this because I don’t think writing off possibly Reclast is the answer for everyone. I had to think long and hard on taking it, but then again I had to go through the same choice for Evenity that did not workout for me.

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@ladydiscdy

I am truly sorry to hear about everyone’s experience with Reclast. I had my second infusion in March with no side effects. My first infusion in 2023 I had flu like symptoms for about 6 hours, then gone. I went on Reclast because I had side effects from Evenity that were nasty. My endocrinologist contacted the drug manufacturer of Evenity that advised that just maybe I wasn’t a good fit for Evenity; hence the Reclast. I guess what I’m saying is there is no one drug fits all and each person and there makeup is different having different impact on each person. Brittle bones is not what I signed up for either and making the decision to go on any drug was very difficult for me. But after a few stress fractures and a decrease on my bone scan I had to choose to assist with my condition. I hope everyone has good luck with their drug of choice. I only write this because I don’t think writing off possibly Reclast is the answer for everyone. I had to think long and hard on taking it, but then again I had to go through the same choice for Evenity that did not workout for me.

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thanks for sharing this - I get my first Reclast infusion on Thursday

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It was recommended to me to drink a lot of water a couple hours before your infusion and take a Tylenol. I did this on my first and second infusion. Also drink a lot of water for the first 24 hours. I hope you have success.

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@karenidfly

thanks for sharing this - I get my first Reclast infusion on Thursday

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Please keep us posted on your Reclast experience. I receive mine in June.

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@ladydiscdy

I am truly sorry to hear about everyone’s experience with Reclast. I had my second infusion in March with no side effects. My first infusion in 2023 I had flu like symptoms for about 6 hours, then gone. I went on Reclast because I had side effects from Evenity that were nasty. My endocrinologist contacted the drug manufacturer of Evenity that advised that just maybe I wasn’t a good fit for Evenity; hence the Reclast. I guess what I’m saying is there is no one drug fits all and each person and there makeup is different having different impact on each person. Brittle bones is not what I signed up for either and making the decision to go on any drug was very difficult for me. But after a few stress fractures and a decrease on my bone scan I had to choose to assist with my condition. I hope everyone has good luck with their drug of choice. I only write this because I don’t think writing off possibly Reclast is the answer for everyone. I had to think long and hard on taking it, but then again I had to go through the same choice for Evenity that did not workout for me.

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One of my closest friends has had two Reclast infusions. She has had no problems.

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