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DiscussionExpert help with proper dosing of Zenpep enzymes after Whipple
Pancreatic Cancer | Last Active: Apr 28 9:48pm | Replies (16)Comment receiving replies
Replies to "I have been told by my surgeon that I need to get a Whipple due to..."
I had a Whipple 5/13/22 at age 70.
Eating small amounts of food throughout the day helped. I had nausea which I later found out was due to Bile Reflux (surgeon had to relocate my bile ducts 50 cm lower in the small intestines). Eating was trial and error as to what agreed with me, but no diarrhea or vomiting. Pancreatic enzymes seem to be working well. No need for screen and haven’t become diabetic!
It did take over a year to get most of my stamina back and now nearly 2 years out I feel so much better.
*Since my cyst had not crossed over to cancer, I did not need chemo!!
I had my Whipple in 2012 but was not prescribed pancrealipase initially. Having exocrine pancreas insufficiency after the Whipple could have simply and quickly been ameliorated with pancreatic enzymes replacement therapy (PERT). Once PERT was prescribed, my quality of life significantly improved. It restored normal GI function and I was easily able to gain weight, muscle mass and strength. Today I feel as good as I did before onset of symptoms leading to my diagnosis 12 years ago.
I did not have any nausea, vomiting, or diarrhea. I was already on a good dose of Creon due to pancreatic insufficiency. The problem I had was needing to eat frequently. I didn't gain weight until I started eating more often. I was eating small amounts and needed to lie down for a while after eating. It gradually got better. Has taken a while to get back a good level of strength . started driving to the grocery store myself after 8-9 weeks I was able to walk a good distance, but didn't feel confident about driving. My quality of life was OK, I don't feel that I am back to my pre illness levels of energy, but I am able to do the activities I normally did, just not sustaining as long.