I have also tried every pill there is, I even searched for other pills at other medical sites online, and tried them all, my primary doctor lets me try anything that I found, and I would start out with a low-dose and build up. They either did not work at all, or they had horrible side effects. Lidocaine infusion is very dangerous, it can stop your heart. don’t do that.. A Doctor Who does Joint injections “ physical medicine and rehabilitation interventional spine“ she is extremely nice and probably the only person who I would let try this. I had asked her if she knew of anything that would help me, and she said she would research it and get back to me and she said that she found that the spinal cord stimulator would help. I hope she is right. I have been told by other doctors that it does not work. I know that she is very nice anyway. She is the first Doctor Who has even tried to help me, and who has done any research about this. I have learned that it is the small nerve fibers that cause the nerve pain in my feet, that is why I was negative for neuropathy. But the burning part is caused from small blood vessels dilating and causing too much of a blood flow into my feet causing the redness. This is what causes the intense burn. So people with erythromelalgia Are really dealing with two kinds of pain at once. I spend the most of the day on the couch icing and elevating. I just saw her yesterday, so this morning I have lots of questions for her. I have to start out with an MRI, in order to get this implanted, and i have to pass a psychiatric evaluation to make sure that I will be able to use the controls. Only other people with erythromelalgia can understand the intensity of this pain. And it is good to know that there are people out there who understand. Thank you for reaching out, it brings me comfort knowing someone understands the pain and frustration. Before I was diagnosed with erythromelalgia i Had asked for many tests. I looked up what can cause nerve pain in the feet, so I was tested for arsenic and heavy metals, I had veins and arteries tested (They only test the large vessels, and the cardiovascular doctor keeps arguing with me that it has nothing to do with blood vessels. Now I am armed with more information and can inform him that it IS the small blood vessels that is involved. He did not believe me when I showed him photos of my feet, and told him that elevation can make me feel some better and it gives me a cool rush at times when the blood returns back down ), and I already told you that I was tested for neuropathy and that came back negative. I can’t remember the other tests that I asked for. It has been ME doing all the research and asking for things except this new doctor is the first one to offer me anything, and I saw on the news this morning that a new spinal cord stimulator just came out, and I read about one of the first people to try it. It is different in that adjusts itself to different movements. I’ll see if I can send you the link .
https://www.southtees.nhs.uk/news/spinal-cord-stimulation-first-i-dont-feel-like-i-have-ms-anymore/
It is a lady who has MS. And she is now pain-free whereas she had pain in arms and legs. This all started for me in 2017, and it just continues to get worse and worse. It was pretty mild when it first started.