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Lung nodule could be slow growing carcinoid: Watch and wait is scary

Neuroendocrine Tumors (NETs) | Last Active: May 30 4:55pm | Replies (40)
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@hopeful33250

Hello @jball77 and welcome to Mayo Connect. As others have said, it is wise to have at least one consultation with a NETs specialist. Mayo Clinic has NET specialists at all of their locations (MN, FL and AZ). If you would like to have an in-person or virtual appointment, here is a link with appointment information, http://mayocl.in/1mtmR63.

If for any reason you are not able to see a NET specialist at Mayo, here is a list of NET specialists worldwide, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

What type of symptoms were you having, @jball77, that led to this diagnosis?

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Replies to "Hello @jball77 and welcome to Mayo Connect. As others have said, it is wise to have..."
jball77 | @jball77 | Apr 25 10:08pm

Honestly, the only symptom I was aware of was pain in my chin. I was also having shortness of breath when going up hills and stairs, but I just thought I needed to get into shape. The tumor was found when I had a spirometry test prior to getting tested for allergies.
I am going to Mayo, Rochester for the surgery to remove the tumor. Do you think I should request an appointment with a NET specialist also?

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