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Zometa, ONJ, when is it really necessary?

Breast Cancer | Last Active: Apr 28 12:57pm | Replies (24)

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@brighterdays

Thank you for so much details. I will be sure to communicate with my care team if I do start on it.
As for the tumor mutations, is there a specific name for the testing? I have never heard of it but sounds helpful in deciding what treatments could actually help.

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Replies to "Thank you for so much details. I will be sure to communicate with my care team..."

It is called somatic testing.
I didn't know about it until the doctor asked if I wanted testing. It was at a teaching hospital and all the doctors milling about were telling me and each other how useless the test was. No one knew where to send the sample and it set on the shelf until my treatment was over. It helped me because I was refusing chemotherapy and kept pressuring me to use chemo. I'd say sure but I'm waiting for the genetics.
This is what I got. the mutation number and letter., the area where each mutation was likely to metastasize, a list of chemotherapeutic agents that were effective against each mutation, a list of chemotherapeutics in clinical trials that I could enter.
I found out that non of the three chemotherapeutic agents I was pressured to take were effective against my mutations.
I hope your care team is receptive.