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What is considered expected follow-up?

Breast Cancer | Last Active: Apr 25 7:08pm | Replies (23)

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@kimogi57

Since you have dense breasts I think you are high risk. I'm not sure it matters, but does your aftercare letter also say fibrous breasts. I also always get this letter and it states I'm 20-26% likely to get BC. I was diagnosed with early ILC 7/23. It was missed by mamogram and US but found by MRI. My oncologist told me that if I have a DMX I will still have to have yearly MRI's. After a lumpectomy I still wanted a DMX. Initially I was told to get the Lumpectomy even though it wasn't what I wanted. I just wanted the C out of me asap so I went along with it. Another letter came about more suspicious areas so I went to several other surgeons and found one to preform the DMX. I had it 2/1/24. My biopsy showed ILC in situ close to the lumpectomy site and many precancerous areas in both breasts. At this point I feel like I'm on my own. My oncologist is out of the office for personal reasons. I'm being pawned off to NPs and telehealth visits. One laughed when I mentioned my body aches. It could be because I went to a different surgeon for the DMX. My mother had a lumpectomy in 2007, a SMX in 2010 and the other SMX in 2014. All for cancer. I didn't want to repeat her surgical history. With my biopsy report, I was on track to just that.. I am probably going to search out another breast cancer oncologist. My advice is to keep advocating for ourselves. I think in most cases we know more about ILC than general oncologists. My first oncologist had me in tears. He was so combative. He told me that I couldn't have had a contrast enhanced mamogram because there was no such thing. If he had even read my file it was right there- done 1 month before our visit. And that I didn't have an oncotype test. I had. And that his follow-up would be a yearly mamogram. I left and canceled our 2nd appointment. Sorry about how long this is. Just please follow your instincts. If you are on this site it means you are learning. Don't give up and fight for the tests you feel you need. Hugs

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Replies to "Since you have dense breasts I think you are high risk. I'm not sure it matters,..."

Isn’t it funny how the beginning stages of this disease are treated with utmost dignity and compassion and then you get assigned to an oncologist and it’s a 180 degree turn for some. I am hoping for the best.