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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (549)Comment receiving replies
Replies to "Lori, Thank you for the welcome. This is all so scary. We are at Mayo Jacksonville..."
It’s great you live an hour away. I’m assuming the programs for Mayo Jacksonville is similar to Rochester. If so, your husband will most likely be required to be within 30 minutes of the clinic for about 100 days.
I know this all sounds so daunting and frightening. While I agree with you about wanting to learn as much about this process as you can, my suggestion is to limit your searches online. So much of the information may never even apply to your husband’s situation and it only serves to heighten the anxiety for both of you. It will be important to trust your husband’s transplant team for guidance as they will become his and your new family for years to come. I was told by my doctor and team repeatedly, that “we are married for life”. And they mean it.
I’m just coming up on my 5th rebirthday. While I joke that it’s ’no walk on the beach’ this life giving procedure is well worth the effort. I had AML, acute myeloid leukemia and had no other option for remission than to have this transplant. I was 65 at the time. Now 70 and feeling like nothing ever happened. I have unlimited energy, healthy and very active. My donor was 20 and I swear he gave me the fountain of youth. So, let’s get you and your husband through this too so you can get on with your lives!
When will he be having the transplant? Does he have a donor? What are your specific questions?