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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@dlydailyhope

@jgoodall
I am a 54 year old female and have small fiber neuropathy and a huge list of other symptoms. Have you tried taking Acetyl L Carnitine and Alpha Lipoic Acid supplements for neuropathy pain? They have helped me some. I started taking them when I was first diagnosed with SFN. Also, do you use lidocaine pain patches (Salonpas is my favorite brand) and capsaicin/CBD nerve pain creams? I do get burning and pain on my feet and face that seems to come and go with flares. It seems many neurologists and doctors don’t really know the cause of many nerve diseases and they play whack-a-mole with us trying different things that don’t work. I do question the toxins in air, water, food, medications (OTC and Rx), and household items, etc. being a source of many diseases that cause nerve damage. It seems we need to detoxify as best as possible to prevent further damage while trying to get relief of current symptoms. Many of the things that might help us feel better won’t come from doctors because they are limited of knowledge beyond prescription medication, diagnostic testing, etc. They know little about diet, nutrition, supplements, holistic medicine, etc.

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Replies to "@jgoodall I am a 54 year old female and have small fiber neuropathy and a huge..."

Hello,

I have not tried Acetyl L Carnitine and Alpha Lipoic Acid supplements. I will look into them! Thanks!
I learned from the Foundation for Peripheral Neuropathy webinar that since I have non-length dependent small fiber neuropathy, Sjogren's autoimmune disease is the cause of my sfn. I am reaching out to a new rheumatologist who treats Sjogren's and I am hopeful that getting the autoimmune disease under control (if possible) may reduce the sfn. and erythromyelagia burning fire flares too.
My eyes are so dry and I have not been able to get the dryness under control. The opthamalogist has tried EVERYTHING. I even get tears made from my blood serum and that still does nothing. Hopefully, some immunosuppressants will help my entire system. Crossing my fingers that I can get some better relief.