← Return to Evenity and side effects: What helps joint and muscle pain?

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@windyshores

I was told not to wear a brace too much, because it weakens the muscles. I don't life anything heavier than a one liter seltozer bottle? I did not do the cement kyphoplasty either.

I did two year Tymlos, excellent for spine. 20% gain, went from severe to borderline. I have tried Evenity recently and cannot tolerate it. I have lupus. Others with autoimmune illnesses have had trouble with it too, on this forum

Tymlos has an adjustable pen so I started with a low dose and moved up to minimize side effects.

I understand the pain you are in. Can you find a good PT? And ask about the effect of wearing a brace on your ultimate pain.

I am limited except for walking! I cook by sliding pans across the counter 🙂

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Replies to "I was told not to wear a brace too much, because it weakens the muscles. I..."

You adjust to get through the day. It is good to learn your walking has not been affected. I have those reacher/grabber things in every room of the house, front and back deck. I have found those plastic brooms and dustpans with the long handles come in handy. Walmart, Sam's and Amazon deliveries are great. I place a metal cart/3 shelves at the front door and they place the heaviest item from top to bottom. I have lost 4 inches of height so have rearranged the entire house. I still shop for my fruits/vegetables. Park near a buggy return and use it for support. One think I am thankful for is the kindness of strangers as I rarely have to empty the items from the buggy to the car due to being asked if I could use some help.
I will ask my rheumatologist at the June appointment about PT and the effects of the brace. It often makes the pain worse as the plastic backing seems to directly hit T12. I am not wearing it around the house as much as I used to. But it a necessity for walks to/from the parking lot and around the stores since the wedge fracture also effects my breathing. I have been told once off Evenity next is Prolia. I have learned enough from this blog not to go there.
Tymlos sounds like a good alternative to request but I would need to overcome my fear of needles. Even though veins are not involved I have had far too many fainting episodes as my veins 'rove' and blow resulting is golf ball hematomas.
My entire life has been avoiding doctors. T12 ended that.