← Return to Evenity and side effects: What helps joint and muscle pain?

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@jillgirl

I certainly hope so! I am glad you are able to walk and enjoy life even with limits. An MRI showed my T11 had fractured and mended and T10 is beginning to go. The T12 is my biggest problem as I am bent over and having to wear a brace. By the end of the day I look like an evolving human trying to reach the upright position due to the thoracic kyphosis. The pain can go off the scale. I was instructed not to lift anything over 10 pounds. I am able to keep some leg strength by standing at the back of the couch on one leg to the count of 300 and other tricks I have discovered. It is my arms that have zero strength now as when I pick up more than two hardback books I feel the weight of it directly in my back, nothing in my arms. They sent me for the cement/balloon solution but was told the fracture was too wedged and at an uneven break. I was given less than 50% chance of relief and the possibility of another break and the cement entering my blood stream going who knows where? Brain? Heart valve? Their suggestion for a permanent solution is to reinforce T12-T2 with rods. I am told if another one breaks like the T12 I would need surgery immediately. All this lead to the Evenity nightmare. I am sticking with it. This blog has been a blessing as the doctors don't seen to know how to reply to my questions. I am certainly having allergic reactions to Evenity bringing/doubling the Sjorgen's flares. There's no way out but through it....and I am determined to get my life back to at least semi-normal.

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Replies to "I certainly hope so! I am glad you are able to walk and enjoy life even..."

I was told not to wear a brace too much, because it weakens the muscles. I don't life anything heavier than a one liter seltozer bottle? I did not do the cement kyphoplasty either.

I did two year Tymlos, excellent for spine. 20% gain, went from severe to borderline. I have tried Evenity recently and cannot tolerate it. I have lupus. Others with autoimmune illnesses have had trouble with it too, on this forum

Tymlos has an adjustable pen so I started with a low dose and moved up to minimize side effects.

I understand the pain you are in. Can you find a good PT? And ask about the effect of wearing a brace on your ultimate pain.

I am limited except for walking! I cook by sliding pans across the counter 🙂