Going to go out on a limb here as I can see no one has posted in a year.
I have Lynch Syndrome passed along by my mother to both of her children, my brother and me.
He has had a couple of rounds of colon cancers, but thankfully, has not had recurrence that we know of in several years. Is checked every other year as am I, with colonoscopy and endoscopy.

I followed my mother with endometrial cancer in 2011. She also had thyroid cancer in her 30's but science is not sure if that is a Lynch cancer or not.
She had kidney cancer in her 70's, which she found herself actually. She had had an annual physical and the doc didn't find the time to let her know that she most definitely had cancer judging from the amt of blood in her urine. Had she not called his office..... She was having no symptoms and felt fine.
After I found out I had Lynch (in my 60's) which was something I suspected, I had already had the uterine cancer and complete hysterectomy.
I decided I had better find a urologist that was highly recommended. She had no idea what Lynch was. Sigh. Renal cancers are common with Lynch. She sent my urine for cytology (good) and did a kidney ultrasound. Also good. However, I did ask about a bladder US as well. She said it would not be helpful. She did not suggest a cysto. I did end up having two due to unexplained bladder pain. She is a miserable person, very impatient, doesn't like to explain things and has no problem saying "I don't know" with the unspoken meaning being "Nor will I find out." However, she is very smart and she likes me because I treat her well and kid around with her. Whatever it takes. The last time I saw her, she said, I don't need to see you for 18 mos. It felt wrong.
In researching, I see that those with Lynch, esp with any specific familial cancers, should be studied every year. With renal cancers, at least a cytology, cysto, US of kidneys and bladder.
Any thoughts or feedback would be appreciated. Thank you.