Connect
← Return to Lung nodule could be slow growing carcinoid: Watch and wait is scary
Discussion
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Neuroendocrine Tumors (NETs) | Last Active: May 30 4:55pm | Replies (40)Comment receiving replies
I have been just diagnosed with a bronchial carcinoid. I thought my only option was surgical removal, possibly including part/all of the right lung. Was this an option for you? What was the process leading to your treatment. I honestly feel like I have had no process.
Replies to "I have been just diagnosed with a bronchial carcinoid. I thought my only option was surgical..."
Hello @jball77 and welcome to Mayo Connect. As others have said, it is wise to have at least one consultation with a NETs specialist. Mayo Clinic has NET specialists at all of their locations (MN, FL and AZ). If you would like to have an in-person or virtual appointment, here is a link with appointment information, http://mayocl.in/1mtmR63.
If for any reason you are not able to see a NET specialist at Mayo, here is a list of NET specialists worldwide, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.
What type of symptoms were you having, @jball77, that led to this diagnosis?
Connect
My tumor team talked about surgery but they would have taken the entire lung. The radiologist said he could target the tumors with sbrt radiation. The team agreed this was the best option so I did it a year ago. I do get monthly sandostatin injections which I have had no problems with. So far so good! Hope all goes well for you.