The first part of your reply I, in turn, respect. But I believe that the ACS should know the MCA protocol for PC of 1x/year for men >50 yrs old. The question, on my part was not phrased well (Orgovyx was stopped shortly after writing that-but the brain fog and cognitive disruption continues) and could have been, "Do you know how many times a year a doctor can give you a PSA test?" MCA also said, "...and as often as is medically necessary..."---My doctor told me 3x/yr just before that post, and this next time he said "...as many times as I want..." MCA said that may be, but that they can say "no" and, then there would be appeals and paperwork.
I have to say that no call to the MCA offices have been positive. but I am glad my doctor changed his "policy" and he is very young, but, also very smart, so he is learning too.
And he just does not blow my aneurysm apart or use anything else which takes away my ability to even remember to take my heart meds (post OH Dbl Bypass) ....I will try to follow (through the heavy -read exhaustion-brain fog and sitting frozen, opening the pills for Tuesday next to the Monday box (on a Monday) and taking Orgovyx when I should have taken my heart meds----{ I am no longer taking my own meds and have turned that over to my wife....maybe driving is next---MRI this Friday }---Sometimes it is hard to get what happens to us.....typed out in a way that is without frustration and fear, free from the anxiety knowing you are going to die 'sooner' and neutral while being treated in a system which discourages questions in a 15 minute appointment with no help for PT, or diet, or counseling, .........but it is not that way everywhere...Everyone is Different .........and if you have 3 mutations, the PhDs running those gene tests do explain that SOP for MPC to the bones may not work...but SOP is what anyone would have to do so as to keep their job...I wish Telemed visits would be allowed Interstate---then PC patients could get the help of a 2nd Opinion and not have to fly or take a train, or drive across the country. Sorry so long --extreme ADD was never a good thing, now it's ...worse...and impacts in an exponential manner, every decision and memory needed to try and slow down the PC...add that to the nightmares and heart poundings and 'tiltings' into the walls, the near T-bone driving scares, leaving the water on, calling the dog by my wife's name in front of her....so much more but stopping ---takes so long to fix the dyslexic typing...>>>a safe day to all-