My “next step” is that my NET oncologist started me on Temozolomide this week 5 days at a time every 4 weeks. Most people here refer to cap/tem & I’m only on the one medication plus an anti nausea prior to each 240 mg dose. He will do blood work frequently & another scan in 3-4 months. Two days in so far only extremely exhausted & joints ache, but feeling OK otherwise. Zebras are tough folks! Hang on everyone ‼️