I was initially seen by a neurologist in Malaysia in August 2017 who ordered a lumber MRI; on the basis of which he was of the view that the issue of my feet was triggered by stenosis at my L4, L5 and S1 levels.

I subsequently went to USA where an orthopaedic clinic in Colorodo gave me PRP injections treatment for my lumber and cervical on 17 May 2018. However when I consulted Mayo Clinic a month later i.e in June 2018, they didn't think that the pain and numbness etc in my feet was the result of back issues. While there I underwent all kind of tests including CT and MRI; and their final diagnoses were that I had idiopathic small fiber neuropathy.

Soon after these diagnosis i.e small fiber neuropathy, I have had a lot of supplements for extended periods of time with no relief such as:

R Ala, Chelated Magnesium, B1 Thiamine, B2 Riboflavin, B3 Niacin,Biotin, Organic Flaxseed, hemp seed oil, Methylfolate, Methylcobalamin, Acetal L Carnitine, K2 as MK7, D3, B-complex Brumalain, Lion's mane mushroom supplement, some Vitamin B12 shots, low dose neltraxone (LDN) and all kind of therapies and remedies (but excluding pain medication which I have avoided for fear of side effects), with no positive outcome such as countless sessions of physiotherapy, nerve conduction studies, Red light and cupping therapy, having used all kind of creams, balms, lotions and oils including CBD oil, Castor oil and frankincense and myrrh oil, soaking feet in cold and lukewarm water with Epsom salt, major diet changes (eliminating sugar, wheat, dairy products (including milk), processed foods, bakery items and vegetables seeds oils) with Intermittent fasting for extended period of times with no relief.

Despite all these steps, there has been progressive deterioration in my symptoms.

When I think back now I have the feeling that antibiotics (ciproflacacin) may have caused the small fiber neuropathy to begin with because my feet started feeling heavy the day I took the first dose of cipro for a simple UTI issue back in 2017. But at that time I didn't know/realise that cipro could be so harmful.

Since 2017 I have consulted a number of neurologists and reputable hospitals and have had quite a few CT scans and MRI.

My recent MRI report from the American Hospital in Dubai indicates that there are some features which raise the possibility of Chronic Arachnoiditis. The irony is that despite this reflection in the MRI report the Spine Specialist and Neurosurgeon who ordered this MRI didn't mention anything about Arachnoiditis to me. It is only me who saw the word chronic Arachnoiditis in the MRI report followed by my own Google and YouTube research that brought me to the conclusion how rare and dangerous this particular disease is so much so that even doctors and Radiologists don't know what it is.

This brings me to the conclusion that despite my best efforts I have not been able to have a definitive diagnosis thus far. I have trouble sleeping, remains half-awaken the whole night, trying to change positions. Mobility has become a huge issue. This disease has not only forced me to leave a very attractive job but has severely impacted my quality of life.