← Return to Intimacy and sexual life living with colorectal cancer

Discussion
Comment receiving replies
@trishalynn

I certainly appreciate all this well written information. I won't know the staging until my imaging and Pet Scan. It will be May 14th so I am sitting here pondering the outcomes, and yes, the suffering too. I just met a beautiful man who thinks enough of me to go through this with me. I told him I don't have all the information. I am going to wait until I speak with the radiation and oncology Doctors what will be left of me to offer in sensuality. Then let my new partner know so he can make an informed decision to opt out. This is not for every one and we are not living together. And the uncertainty of the unknown. But at my age, that is already uncertain so I'm not dwelling on if I'm going to die, but how long to live and live I will. I just hope I can still have a partner. Wish me luck on this.

Jump to this post


Replies to "I certainly appreciate all this well written information. I won't know the staging until my imaging..."

It is so important to be honest from the start, @trishalynn , as you are being with your new partner. If he really loves you, intimacy and sexual relations can be worked out to accomodate what your will be feeling physically.

In December of 2022, I had a transanal resection for a low lying pre-cancerous polyp. Then I had radiotherapy + chemotherapy pills early last year because the biopsy had mentioned positive margins, not even stage 1. After the radiotherapy, my husband and I retook our sexual intimacy with him having to be extracareful at first not to get close to my anus or the inner butt cheeks, where my skin had been burnt by the radiotherapy. My nerves were not affected and I could enjoy intercourse as before.

Then I developped a rectovaginal fistula (because of the radiotherapy) that at times made me uncomfortable in my head about having intercourse since I could have some fecal secretion coming out of my vagina. My husband was all relaxed about it, which was encouraging for me and helped me enjoy.

At the end of January this year, I had a two-step Turnbull-Cutait pullthrough with coloanal anastomosis, plus a vaginal flap, to get rid of both the fistula and a newly-appearing polyp facing the fistula. During the surgery, they found out the fistula had grown to touch the sphincter. The pullthrough means I had a total resection of my rectum, sigmoid and mesorectum, a delicate surgery that could affect many nerves. From masturbation, I can tell that the nerves have not been affected, even if it is harder for me to lubricate and orgasm, but this can be because of what goes on in my head. It's hard for me not to think that gases or feces could come out uncontrallably during sex. Also, I still have stitches in my vagina from the vaginal flap, and my husband and I can tell that my vagina feels shorter/smaller. We have not tried penile penetration. When the stitches have fallen, I will probably be able to use dilators. Also, when I am fully healed at the anastomosis, I will be allowed to have pelvic floor therapy. All this should help.
My husband and I are clear that we need to be flexible and slowly work with what is possible with the current state of my body and with the emotional turmoil in my head. We are also clear that probably our sexual intimacy won't be what it was before, but it doesn't mean we can't enjoy the current state of affair and we'll learn to be creative in enjoying our intimacy in other ways.
We'll be celebrating our 30th anniversary in July.

First, sending you good vibes all around. This is not easy stuff to go through, never mind to talk about, and especially with a relatively new romantic partner. Hats off to you both - you'll be exercising your vulnerability muscles like crazy, so sending you lots of positive, emotional energy.
Just a thought - you may wish to have your partner accompany you on your appointments? It may help them feel more included, give you someone to lean on, and allow them to ask their own questions. I recognize this isn't for everyone. Only you know how you feel. Just a suggestion, but trust your own intuition and do what feels best to you. And please keep us posted. We're rooting for you! xo