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Last week (4/17/24) I had my second lumpectomy to remove PLCIS (pleomorphic lobular carcinoma in situ). A small tumor (2 mm) of invasive lobular carcinoma was removed during the first lumpectomy (2/7/24), but the margins were not clear of PLCIS, indicating a second lumpectomy. Unfortunately the PLCIS is less than 1 mm from the new true margin. I will see what my surgeon recommends, but I am worried that this means another lumpectomy or mastectomy. Has anyone had a similar experience with PLCIS?
Replies to "Last week (4/17/24) I had my second lumpectomy to remove PLCIS (pleomorphic lobular carcinoma in situ)...."
4/23/24 First lumpectomy to remove PLCIS, they found a grade 1 invasive lobular carcinoma in the center and it was all removed but the surgery couldn't get clear margins. 3 things that I could do. 1) 20 min surgery to get a lymph node. 2) Lymph node and clear margins. 3. Mastectomy. Then 5/10/24 I ended up with Hematoma surgery from a popped stitch. (Don't sneeze) They got a lymph node (and it was neg.) Still no clear margins of PLCIS. 7/18/24 Surgery is scheduled for Mastectomy. ** And that's almost the end of my story. augmentation both breast. The Oncotype test came back insufficient amount to complete test. So in month I have surgery.
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I've had LCIS w/ some recurrences since 2012. Do not know what pleomorphic is.
As another Lobular BC patient states along with my more recent surgeon (2022)Lobular is the "sneaky" cancer. I thought I was done w/ it in 2019 (different surgeon & dif hospital cancer ctr.), but it cropped up again in a VERY similar place. (left arm pit both times dodged bullet that it was not in a lymph node) BUT the 2019 surgeon sttated to me that she chose not to be too aggressive with the margins, I didn't really think much of her saying that, just that I trusted her
decision and assumed she had good reason for that....Well I WISH she had surgically left wider margins around the tumor in 2019. My subsequent surgeon who is so incredible and experienced at Duke intimated concern about the previous surgery having conservative margins (I had double mastectomy in 2012) and was more aggressive since the new tumor while small had attached to my arm pit muscle area. There was a suspicious thing on a vertebrae at the time of that MRI/Cat Scan, but radiologists said that it was a bone island and not to worry. Well , this late Fall '23 my PA wanted to have another MRI on my back due to my straining my back (happens a lot in my work) and that "bone island" was biopsied this time around and it was Metastic LBC not actually a Bone Island...so my journey continues , but I think maybe a Mastectomy should be considered since there's not getting around that it is "The sneaky BC" Hoping for your full recovery at this time!