@tclare15 - what a frustrating series of experiences. I share your skepticism that you will get a straight answer during your upcoming appointment. However, it is probably necessary to clarify your gyn's perspective and ascertain her explanation for why her opinion diverges from that of the pathologist.

I think the pathologist was advising you to have another procedure done. S/he was giving you a head's up that the purpose of the hysteroscopy was not accomplished. Have you considered a second opinion?

I am not in the medical field. But I was in a similar situation to you 9 months ago: long past menopause with bleeding and abdominal pain. An ultrasound showed my endometrial lining to be 18 mm. My gyn wanted to do an in-office endometrial biopsy. I declined and insisted on a procedure in a hospital under sedation. I had a hysteroscopy and D & C in hospital. Pathology report came back with diagnosis of endometrioid cancer, FIGO stage 2. Subsequent CT scan showed pulmonary nodules, subsequent PET scan and lung biopsy showed metastases. I had hysterectomy and BSO in January 2024 (pathology report showed 100% myometrial invasion). Started chemo and immunotherapy in February, and am now N.E.D. So kind of a bad news/ good news scenario.

All along the way I had to speak up for myself, and follow up when professionals (or their admin staff) dropped the ball. It's tiring and frustrating. When I asked my 1st gyn a series of questions about anesthesia, she blurted out, "Do you want to cancel this surgery? Because I'm coming in on my day off." She sounded like my mother on her worst day. Not wanting an angry woman with a sharp instrument rummaging around in my uterus, I canceled the surgery and started all over again with a different gyn practice and different hospital. In sum, we have to navigate not only our anxiety about serious health issues, but we have to deal with other obstacles, as well.

But this is your health. No one in health care will care as much as you do. I am thinking of you, and wishing you strength and much better outcomes in your next steps.

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