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@jonesja

Many or I probably could say most patients go on a feeding tube during the most difficult time during head and neck radiation. I was like your husband and extremely worried if I went on a feeding tube I may never get back off. As I understand now the feeding tube makes your life much more easier during treatment and then you can gradually wing off of it. I FORCED myself to eat and trust me it was difficult. I did manage to stay off the feeding tube but looking back I probably should have just gone on it for a few months. I did lose about 90% of my ability to swallow, I had No taste at all , and my salvia production was about zero. . l would suggest He start doing mouth, Neck, tongue and swallowing exercises prior to Radiation. This will help him in the future as He begins to wing off his feeding tube. If you have a Speech therapist they can help you with this. Ok the good news. It is highly likely He WILL be able to get off the feeding tube in the future. He WILL be able to eat and taste some of his favorite foods. I finished TORS 12 months ago and Radiation 9 months ago. Today I can eat and drink about anything I want. My taste buds are about 80% and My throat mucositis has almost gone away. Saliva production is about 80% as well. There is light at the end of the tunnel. Hang in there. Walk with God and He will show you the way. Faith is a very powerful thing. Wishing you guys well!

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Replies to "Many or I probably could say most patients go on a feeding tube during the most..."

Thank you! He had TORS surgery Jan 25 and has been unable to swallow since. His neurologist thinks there is nerve damage. I don't kniw.
He's been doing the swallowing exercises for 3 months with very little progress. As we enter the next phase of chemo and radiation (they did not get it all as we found in a catscan 3 weeks ago when he ended up in the ER with aspiration pneumonia) I expect he will make no progress because of the soreness. It is just so disheartening gor both of us but comments from folks like you give me hope! Thank you!!