I have suffered through the same problem, and I have posted and cautioned others on the Mayo Squamous Cell (SCC) Treatment group to not consider this as a treatment alternative for SCC for legs. My posts were in response to Mayo patients seeking alternatives to Moh's.
You are suffering because the medical device manufacturer recommends this treatment despite the fact it is not indicated for the treatment of legs. I have conducted considerable research on the studies for this treatment and would be pleased to share my information with you.
In order to prevent this from happening to other patients, I would encourage you to look at the adverse injuries on the FDA Maude Database. If you search under manufacturer, "Sensus Healthcare", with a date range from 2016 to present, you will find the majority of adverse events relate to SRT injuries to legs. I filed a voluntary patient adverse event report on the FDA Maude database in October 2022 and provided updates in January and April 2023.
https://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfmaude/search.cfm
My SRT injury was on the right tibia. I also had Hyperbaric (HBO) treatments and was at one point hospitalized due to wound complications. I can report that my wound eventually healed, I was under the care of a small wound center and transferred to a major University Hospital Wound Care Center.
Unfortunately, we are not alone in this issue, and I really feel terrible that you are suffering from SRT. Both wound centers that treated me reported they had previously treated SRT leg injuries. I came across a blog by Caroline Fife, MD entitled "Stop the Madness of Radiation to the Shin", showing this is not an isolated problem.
I would be pleased to communicate and share my research with you if you want to correspond. I appreciate the pain and frustration you are experiencing and hope you will see some improvement from your treatments. I regularly monitor the Mayo site and post information in the hope that others do not choose SRT for treatment of their legs and do not have to endure the same suffering.
Thomas,
Thanks for your reply...at least I know I am not the only one that has experienced this "insanity".
I chose SRT be cause I had good experience with it on other parts of my leg and wanted to avoid the cutting and "gymnastics" associated with Moh's.
I think a big part of the problem that I am having is due to 1) Lack of training of the staff that treated me, 2) Lack of supervision and 3) the Provider/Location that I went to for SRT had recently been sold to a large out of state firm that brought in staff that I did not know and were not familiar with the procedures and equipment they were using.
I really never felt comfortable with the whole process. Hind sight being 20/20 I should have pulled the plug on this early on...but I trusted my Dr's/Staff. I have to remember to follow my gut.
How long did it take you to reach a final resolution? I have been dealing with this for over a year and it has disrupted my life.
Thanks for your advice and concern.