← Return to How do you plan your day and conserve energy? Are you a Spoonie?

Discussion
Comment receiving replies
@SusanEllen66

@sueinmn my s spoons have taken a hike without me! I was diagnosed with narcolepsy 2 also known as idiopathic hypersomnia. Now I take medicine in the morning to try to keep me awake all day and it doesn’t always work so spoons for me right now just I forgotten about them. I don’t know if they’ll leave and help. I’m just trying to stay awake.

on top of all of this I was just diagnosed with Alzheimer’s dementia. I am spinning, my head is just having a hard time grasping this new situation. I was due to start a new infusion that they have and it’s just too new and I am still in such a mild state that I can wait. I’m afraid of some of the warnings because I’ve already had a brain bleed, and that new medicine can cause brain bleeds.

If there was a piece of silverware for dementia it would be a fork.

Jump to this post


Replies to "@sueinmn my s spoons have taken a hike without me! I was diagnosed with narcolepsy 2..."

Ouch! You have a lot on your plate right now. I think you are right about the fork and Alzheimers - such a nasty surprise. Hang in there and keep an eye out for your spoons.
Suee