← Return to Starting Orgovyx - any advice based on experience?

Discussion

Starting Orgovyx - any advice based on experience?

Prostate Cancer | Last Active: Apr 23 3:49pm | Replies (14)

Comment receiving replies
@colleenyoung

@robertmizek and everyone on this thread, you may also be interested in the helpful comments and shared experiences in this related discussion:
- What's your experience with Orgovyx (relugolix)?
https://connect.mayoclinic.org/discussion/the-orgovyx-thread/
Using the keyword "Orgovyx" in the group's search field offers a weath of related discussions relevant to starting, ending and during treatment with Orgovyx as well:
https://connect.mayoclinic.org/group/prostate-cancer/?search=Orgovyx&index=discussions

Jump to this post


Replies to "@robertmizek and everyone on this thread, you may also be interested in the helpful comments and..."

Interesting thread — I'm surprised by the severity of some of the reactions reported.

In my case (with Firmagon, which is chemically similar) it's hard to sort out whether any specific side-effect comes from ADT, my androgen-reception inhibitor, my blood thinner (for DVT acquired while bed-ridden in hospital), the nerve damage caused by the metastasised tumour compressing my spine, or the emergency surgery and cement and rods in said spine.

But while I've experienced the expected testosterone-deprivation symptoms (mild gynomastia, need for an afternoon nap, thinning of body hair, reduced libido, and some initial weight gain — now under control) in the 2½ years since I started on ADT, every month I've felt stronger, not weaker, and I've never had the severe heart-pounding, brain-fogging side effects others warn about.

Am I just lucky?