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Updating about My Lanreotide Injections & CT Scan
Neuroendocrine Tumors (NETs) | Last Active: Jun 15 10:40am | Replies (61)Comment receiving replies
What is the Y 90 treatment? I also have had good results with the Lanreotide plus the Capecitabine & Temozolomide treatment but now after 5 years there’s concern about bone marrow loss so I just took my last chemo cycle and will remain on the Lanreotide only. Cat scans will determine next steps & PRRT is possibly the next. Having concerns about radiation. Lots of new treatments are coming out recently. Any thoughts appreciated
Replies to "What is the Y 90 treatment? I also have had good results with the Lanreotide plus..."
I had the Y90 In August of 2022 at University of Michigan as a follow up to 7 months of Captem that did not shrink my tumors. Just had my 35th Lanreotide injection also. I have about 30 tumors that desperately needed shrinking as I have functioning tumors (gastrinomas) they were causing a lot of problems treatment itself wasn’t too bad they did right side of liver then 30 days later the left. I did have a good response some tumors were killed and most of the others had reduction been stable for about 20 months. Going on a new treatment as soon as progression begins probably soon as this treatment only lasts so long. It is a high dose radiation with possible side effects
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The Y 90 treatment was to my husband‘s liver, 1/2 at a time, after a mapping procedure using dye only to see if his body tolerated it. It is a procedure done through the groin feeding microscopic beads filled with radiation to kill the tumors in my husband‘s liver. It has been around for many years as one Mayo clinic NETS member said he had it done 13 years ago. Results, take about three months to show up on a scan. It doesn’t always work but we are hopeful. Good luck to you.