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Zometa, ONJ, when is it really necessary?

Breast Cancer | Last Active: Apr 28 12:57pm | Replies (24)

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@rococo325

My MLBC to a vertebrae is MBC to bone, w/ a 2cm lesion on Vertebra discovered in12/23. Zometa was suggested to me even though the scan in March showed no change. It appears to me it's just protocol to a certain degree. I am very healthy except for having had crummy misdiagnosis and substandard surgeries for LBC in Florida since 2012. So I have had no chemo, some radiation after I found a tumor in left armpit (all BC was in left breast only, but had double Mas.
I am estrogen positive so take low dose Anastrozole since 1/23 and I take very good Bone Desnsity natural Pill by Jarrow along w/ there D3 that has K in it....and other holistics. I feel fine, and questioned the Zometa --PA said it was to avoid bone fractures in the future. Im 62.
I have a lot of dental work and had oral bone & gum issues for a long time. So I am worried about the ONJ & see Dental Specialist for a consult on my teeth/bone health. I feel if I eat very healthy which I have bascially , but will be even more vigilant w/ good calcium, etc. supplements and foods....I can monitor my status as planned every 3 mos.

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Replies to "My MLBC to a vertebrae is MBC to bone, w/ a 2cm lesion on Vertebra discovered..."

I am a Zometa advocate, but believe me, I can appreciate your concerns about it. Did you get an opinion from an oncologist? (as opposed to a general medicine PA) ? The main reason I took Zometa was not for bone strength (I am a milk addict) but as a tumor suppresant (prescribed by Dana Farber right after I completed dose dense chemo and radiation for a period of 6 months). I also had LBC (stage IIIc), dxed in 2019 at age 69. Now my teeth are literally breaking and falling out (they suspect from the chemo) and NO dentist will touch me. Having said that, I had to have to chemo, so it was a matter of the devil you know and the one you don't. So I understand your concerns. That's why making these treatment decisions are such a personal matter. I also take Anastrazole, with little side effects except for very dry hair.