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Multifocal Adenocarcinoma of the lung, continual recurrences
Lung Cancer | Last Active: Jun 14 6:32pm | Replies (472)Comment receiving replies
Hello,
I was diagnosed with multifocal lung cancer in 2020 and had a 5.2 cm nodule removed through VATS upper left lobectomy. Because of it's size chemo was recommended and I did 4 rounds.
In 2024 I had further surgery (Robotic segmented surgery) to remove 4 nodules in upper right and lower right lobes. The larges nodule was 4.1 cm. The biomarkers available so far (surgery was recent) are ALK negative, KRAS negative, PDL-1 50%. EGFR result is not available yet.
I am being recommended to do more chemo (4 rounds) followed by immunotherapy for a year, which I am very concerned about. Given the properties of multifocal lung cancer and given the fact that I've already done chemo I don't see the value of having done that in the first place and consequently I question this recommendation.
Also, I have another nodule that will be treated with SBRT soon.
I'd like to hear from other Multifocal lung cancer patients what their experience or knowledge is of treating this type of lung cancer with chemo and immunotherapy or targeted therapy. Is it a common treatment plan? Pros and cons? Thank you.
Replies to "Hello, I was diagnosed with multifocal lung cancer in 2020 and had a 5.2 cm nodule..."
Hello TrudyHS,
Do you know the cause of your cancer? Have your ever worn a Philips CPAP machine? I would like to talk further with you.
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Thanks for sharing your experience. I too have multifocal lung cancer (bilateral also - in both lungs).
I agree with your concerns...given that there is always another nodule to treat so it requires planning. Did the chemo and immunotherapy provide any benefit regarding the other nodules that they can measure?
After two VAT surgeries, I had SBRT treatment for a different two nodules. I developed radiation-induced pneumonitis (one of the risks with radiation) and was put on Prednisone. The treated area is now obscured on my CT Scans and it is not sure what is going on.
My Pulmonologist had mentioned the possibility of immunotherapy but now says that would be too risky given my episode of pneumonitis (which drugs can also cause). He has said that surgery and ablation are my options now.