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@margaretamada

I don’t know if this will help anyone. I suffered from severe loss of balance and intermittent dizziness back in 2021 when I first came down with Long Covid. Someone in another LC support group posted a couple of articles about an inflammatory process called Mast Cell Activation Syndrome which had symptoms identical to my form of LC. In the absence of any other treatment protocols, I adopted what is used to treat Mast Cell Activation Syndrome. This consisted of use of high doses if antihistamines and cutting out foods which foster inflammation. I got tremendous relief cutting out coffee ! The antihistamines included daily double dose of cetirizine and 40 mg of famotidine (which is from another class of anthistamines) and at night 100 mg of doxylamine which also helps me with the insomnia. In addition my PCP ordered physical therapy for several months. doing balance exercizes. One other treatment I turned to to reduce inflammation was from Ayurvedic medicine: an anti-inflammatory food product called Chyavanaprasha which I spread on buttered toast each morning (available on Amazon). In time I added a purified anti-inflammatory supplement from the Himalayas called Shilajit which reduced the brain fog further to where I could read again. Hope this helps !

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Replies to "I don’t know if this will help anyone. I suffered from severe loss of balance and..."

I have suffered from dizziness since having COVID in November 2020. It has not allowed me to walk well or confidently. I haven't fallen however, but sure feel like I could at any moment. I have been to a bunch of neurologists, chiropractors, acupuncturists, etc. with no improvement. In fact, I think I am getting worse slowly. Recently I have been going for gamma globulin infusions with some improvement in neuropathy, but no improvement in balance. I have done a bunch of physical therapy at several clinics. So far nothing has helped. I monitor this site to see if anyone has come up with the "magic bullet" because I am ready to get on with my life.

Thank you so much for sharing. I pray we can all continue to uplift one another in this medical journey.