I only provide this (sorry the whole fisrt part is missing) so readers might know how frustation can jsut knock you down and it is a horrible feeling when you are sick...was on Phone with MCA and chatting with ACS....not a good day...

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Sarah
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Chat started at 5:24 PM
S
Hello Thomas, thank you for contacting the American Cancer Society. My name is Sarah. How can I help you today?
Sarah

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Sarah
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Chat started at 5:06 PM
S
Hello Thomas, thank you for contacting the American Cancer Society. My name is Sarah. How can I help you today?
Sarah
SEE ABOVE
S
Hi, Thomas. I can certainly see what information we have to help. Have you been diagnosed with stage 4 prostate cancer, or are you contacting us on behalf of someone else?
Sarah
5:07 PM
YES NO
5:08 PM
S
All right. Are you currently in treatment? If so, what type of treatment?
Sarah
JUST STOPPED ORGOVYX
S
We have information about following PSA levels during treatment for advanced prostate cancer. Would you like me to share that with you? Or will you no longer be having treatment?
Sarah
5:10 PM
?
5:11 PM
S
Do you have a question about my response above?
Sarah
Y
S
What is your question?
Sarah
WAIT
S
Sure, I can wait a few minutes.
Sarah
5:12 PM
NEED TO KNOW....HIOW TO ASK MT DOC WHY HE SAYS 3X A YR FOR PSA AND MCA SAYS 1X A YR UNLESS MORE TESTS ARE MED NEC ,,," "
5:14 PM
Sooooooooooooooo
Hi, Thomas. Thank you for chatting in again. I shared some information in our previous chat that you may not have seen. Please give me a moment to share it here.
You can call your doctor's office or send a message on your patient portal, if you have access to that. Your doctor should be able to explain why they told you that. We have some information on PSA tests during treatment for advanced prostate cancer. I am sharing some of that information below and a link where you can read more. We do not have recommendations for how often these tests should be done, however. If you are running into some conflicting guidelines about this, I recommend asking the people who are giving you this information.

"When treatments such as hormone therapy, chemotherapy, or immunotherapy are used for more advanced prostate cancer, the PSA level can help show how well the treatment is working or when it might be time to try a different treatment....if the cancer has spread outside the prostate, the actual PSA level is often not as important as the direction and speed with which it changes."

Following PSA Levels During and After Prostate Cancer Treatment
https://www.cancer.org/cancer/types/prostate-cancer/treating/psa-levels-after-treatment.html
5:25 PM
S
Please let me know if you have questions about that.
Sarah
no questions about that....since last Nov
5:26 PM
my ?s r about Ins and MCA and my doc and my bone cancer w 3 mutations ie = one of the most aggressive strains .....
Only your doctor and your health insurance can explain to you what they have told you. We do not have information on what your doctor said or what your insurance will cover.
My ins DOES NIOT COVER blood test ONLY MCA does....you should know that if you work with CANCER
5:28 PM
We provide information about cancer, but we are not involved in the decisions about how often PSA tests should be done. Again, I recommend that you speak with your doctor and your medical coverage providers about this. I have shared all of the information we have about this topic.
my doctor is saying 3x a yr is his limit for tests...MCA told me just now----< 5min ago that MCA pays 1x a yr after 50 yrds old and then when "medically necessary"
Do you have any other questions about prostate cancer today?
We provide information about cancer, but we are not involved in the decisions about how often PSA tests should be done. Again, I recommend that you speak with your doctor and your medical coverage providers about this. I have shared all of the information we have about this topic.
S
Do you have any other questions about prostate cancer today?
Sarah
not WITH YOU.............
Thank you again for contacting your American Cancer Society. Please do not hesitate to contact us in the future if we can be of any assistance.

I wish I could have asked my question better---