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Replies to "Hi Aaron…sorry to hear your neurologist whom you liked left the area…I’m sure it’s so frustrating...."
Neuropathy | Last Active: Aug 17 10:08pm | Replies (34)
Comment receiving replies
Replies to "Hi Aaron…sorry to hear your neurologist whom you liked left the area…I’m sure it’s so frustrating...."
Sarcoidosis runs in my family. This part of this paper (https://www.ccjm.org/content/85/10/801) describes my symptoms to a T: “Random patterns suggest an immune cause
Symptoms may also have a non–length-dependent distribution that is asymmetric, patchy, intermittent, and migratory, and can involve the face, proximal limbs, and trunk. Symptoms may vary throughout the day, eg, starting with electric-shock sensations on one side of the face, followed by perineal numbness and then tingling in the arms lasting for a few minutes to several hours. While such patterns may be seen with diabetes and other common etiologies, they often suggest an underlying immune-mediated disorder such as Sjögren syndrome or sarcoidosis.8–10 Although large fiber polyneuropathy may also be non–length-dependent, the deficits are usually fixed, with no migratory component.”
My (former) Mayo neurologist knew the author (Dr. Tavee) and agreed after all the testing that I was probably a fit.