Gig666, I am somewhat appalled that your docs didn't give you more options rather than just live a good life. However, remember that second opinions are frequently sought in these cases. You can likely even do a video consult with Mayo or another facility.
My NETS were discovered 6 years ago when I had a blockage in my small intestine. There went 10" of that. The following year another blockage - this one in my large intestine. Good-bye 11". I'd been misdiagnosed for 11 years prior to 2018 because mine never showed up on any type of scan - so I can only have the Ga68 Dotatate. And no one I saw ever suspected NETs so never did the right labs.
Anyway, after the first surgery I immediately went on Octreotide LAR injections (and still are). I have small tumors all over and one larger one in my stomach that they say is not removable. So in 2021 I went to Mayo in Phoenix and did PRRT. My condition is considered "stable" and my tumors "non-functioning". I MAY also have IBD-D. Anyway, I'm turning 75 in July and still here. There's always hope and there are always options. I would encourage you to seek a second opinion. You'll never really know if there are options for you unless you do. And remember there are trials going on in multiple places.
You seem to have a "fighting spirit". Keep that up!