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Surgery, radiation, prognosis questions about my dad

Lung Cancer | Last Active: Jul 8 1:47pm | Replies (15)

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@flusshund

@supportfordad, you have indeed found a supportive group. I've been here since shortly after my initial diagnosis in 2018, when I was also looking for answers I felt my doctors weren't giving me.

The vast majority of lung cancer is nonsmall cell lung cancer. Treatment options will vary by subtype. For more information, I'd start by asking your doctor what type of lung cancer your father has. There are many subtypes and they're finding more every day, many with their own unique treatment plan.

I'm a huge fan of second opinions. I got a second opinion after my initial treatment plan in 2018 and again after mine metastasized to my brain in 2020. In 2021, I flew to Houston to get a second opinion from MD Anderson, which is one of the best lung cancer treatment centers in the country. Advancements are being made so often that this fact alone is a good reason to get a second opinion. Even is you hear, as I did, "No need to come back. Your doctors are doing everything we would have done. Listen to them." it's very reassuring. There's an old Japanese saying that translates to "All of us are smarter than any of us."

I'm a member of GO2 for Lung Cancer, go2.org, which has a monthly "Raising Hope" webinar over YouTube Live or Zoom where a group of survivors share experiences and support. Last month, they had a guest speaker who was a doctor specializing in improving patient experiences. She admitted that, as a group, they need to do better. She stated that currently, you need to be your own patient advocate, and, yes, the squeaky wheel gets the grease. Doctors really are that busy and pulled in that many directions.

Best of luck to your dad and you. Being the caregiver can be as hard as having the cancer yourself, so remember to also take care of yourself.

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Thank you! I will check out the go2.org website and tell my dad. He still doesn’t want a second opinion, but we are asking more questions and getting more information now.
Your story gives me so much hope. 💙 I hope you’re feeling good.